The ALS Association Northern Ohio Chapter is seeking a dynamic individual to expand the services we offer to support people and families living with Amyotrophic Lateral Sclerosis (ALS) also known as Lou Gehrig’s Disease. This position will provide care management support, education and advocacy to families living with ALS throughout the Northern Ohio territory. Knowledge and experience with progressive disability, physical rehabilitation, home health and end-of-life care required.

The Care Region will be assigned by the Director of Care Services within the 33 county region covered by The Northern Ohio Chapter. Position requires significant phone and email support, as well as virtual home visits with people with ALS and their families, as well as some travel to family homes and local community as needed. Strong knowledge of medical and social services resources is required.

Position reports to the Director of Care Services located at the main office in Independence, OH. Periodic travel to the main office for training and staff development will be required.

MA/MS social work degree with 2 years’ experience hospice or nursing facility experience strongly preferred; LSW social worker or nursing and other allied health professionals with 5 years hospice or nursing facility experience may be considered. Current applicable medical license required.


Major Responsibilities


  •  Responds to patient and family inquiries for information on ALS or community resources.
  • Plans, implements and evaluates programs and services.
  •  Facilitates access to chapter services resources such as durable medical equipment, assistive technology, educational materials, and respite care resources.
  •  Provides virtual or home visits to people with ALS as needed.
  • Advocates for individuals with ALS in accessing healthcare or community resources.
  • Plans and facilitates monthly support group meetings as required.
  • Provides in-service education programs to local hospice, home health agencies, hospitals, and skilled care facilities.
  • Contributes or reviews articles pertaining to ALS management and information for chapter communications.
  • Maintains updated information on ALS, ALS specific research, patient care techniques, and equipment.
  • Works with other chapter staff as a team member to provide effective services for people with ALS.
  • Liaise with Chapter’s board members, advisory council and volunteers in the Care Region.
  • Participates in Chapter community awareness, fundraising, and advocacy events held in Care Region.
  • Participates in monthly Chapter staff meetings.Participates in continuing education seminars, workshops and conferences as available and necessary.
  • Maintains records/files and provide reports as needed.
  • Performs administrative tasks as necessary.
  • Other duties as assigned.


Minimum Qualifications


  • MA/MS social work degree preferred medical social worker with 5 years hospice or nursing facility experience strongly preferred. Current Social Work license required. Nursing and other allied health professionals with similar experience may be considered.
  • Ability to assess both physical and psychosocial needs of people with ALS and their families based on knowledge of ALS and its ramifications.
  • Knowledge of durable medical equipment, durable medical equipment vendors, insurance reimbursement, and the rehabilitation needs of people with progressive disability.
  • Knowledge of or capacity for learning about ALS symptom management and treatment options for people with ALS.
  • Knowledge of community healthcare resources.
  • Strong organizational and communication skills, including computer skills.
  • Possesses and expresses a positive attitude toward people with ALS and people with disabilities.
  • Ability to function independently within guidelines.
  • Skill and experience in working with volunteers and students.
  • Ability to establish and maintain professional relationships with clients, volunteers, human service professionals, the public and co-workers.
  • Skill and experience in interviewing and counseling in a healthcare environment.
  • Ability to make decisions, resolve conflicts and manage stress.
  • Ability to maintain confidentiality of patient and family information.
  • Flexibility to work evenings and weekends as needed.
  • Flexibility to travel as needed.
  • Must own and be willing to use personal car for business travel.



Salary is commensurate with experience. The ALS Association Northern Ohio Chapter offers a generous benefits package including 100% employer paid medical and dental premiums, employer contribution to Health Spending Account, 14 paid holidays (including the full week between Christmas and New Year’s Day), Simple IRA retirement with 3% employer match, full reimbursement for employer-required licensure (if applicable), professional development reimbursement, generous Paid Time Off, and more.

The ALS Association Northern Ohio Chapter is an equal opportunity employer and believes that each team member makes a significant contribution to our success. That contribution should not be limited by the assigned responsibilities outlined in a job description. Therefore, this job description is designed to outline primary duties, qualifications and job scope, but not limit the incumbent nor the organization to just the work identified. It is our expectation that each team member will offer his/her services wherever and whenever necessary to ensure the success of our endeavors.